Patient Guide: Global Open-Label Extension Study of Del-desiran for the Treatment of DM1

Why Use Quri.ai for This Trial?

  • ✓ Simplified eligibility checker - know if you qualify in minutes
  • ✓ Direct contact with study coordinators at 6 locations
  • ✓ Plain language explanations of medical terms and procedures
  • ✓ Personalized enrollment support throughout your journey
  • ✓ Free service - no hidden fees or obligations
Trial ID: NCTNCT07008469
Status: ENROLLING_BY_INVITATION
Condition: Myotonic Dystrophy Type 1, DM1, Myotonic Dystrophy, Myotonia, Myotonic Dystrophy 1, Myotonic Disorders, Steinert Myotonic Dystrophy, Steinert's Disease
Phase: PHASE3

Where You Can Participate

This study is available at 6 locations across the country.

Top locations include:
  • • Stanford, California
  • • Gainesville, Florida
  • • Kansas City, Kansas
  • • And 3 more locations

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Global Open-Label Extension Study of Del-desiran for the Treatment of DM1 - Join Clinical Trial NCTNCT07008469

How to Join This Clinical Trial - NCTNCT07008469

Learn how to participate in this PHASE3 trial studying an investigational therapy for Myotonic Dystrophy Type 1, DM1, Myotonic Dystrophy, Myotonia, Myotonic Dystrophy 1, Myotonic Disorders, Steinert Myotonic Dystrophy, Steinert's Disease. Current status: ENROLLING_BY_INVITATION.

Am I Eligible for This Clinical Trial?

This clinical research study is looking for participants with Myotonic Dystrophy Type 1, DM1, Myotonic Dystrophy, Myotonia, Myotonic Dystrophy 1, Myotonic Disorders, Steinert Myotonic Dystrophy, Steinert's Disease. Eligibility requirements include specific age ranges, health status, and medical history. Contact the study team to learn if you qualify.

Condition Being Studied
Myotonic Dystrophy Type 1, DM1, Myotonic Dystrophy, Myotonia, Myotonic Dystrophy 1, Myotonic Disorders, Steinert Myotonic Dystrophy, Steinert's Disease
Treatment Being Tested
Investigational treatment
Study Phase
PHASE3 - Large-scale efficacy study
Enrollment Status
ENROLLING_BY_INVITATION
Study Identifier
NCTNCT07008469 - ClinicalTrials.gov Identifier
Sponsored By
Study sponsor

What to Expect as a Participant

Participating in this clinical trial involves:

  • Initial screening to determine eligibility
  • Regular study visits and health assessments
  • Receiving the study treatment or placebo
  • Medical monitoring and follow-up care
  • Contributing to medical research that may help others
  • Potential access to new treatments before they're widely available

Clinical Trial Benefits and Compensation

Participants in this clinical research study may receive:

  • Close medical monitoring by healthcare professionals
  • Access to potential new treatments
  • Compensation for time and travel (varies by study)
  • No-cost study-related medical care
  • The opportunity to help advance medical knowledge

Where Is This Clinical Trial Located?

This study is enrolling participants at 6 locations. Find a study site near you:

Clinical Research Site

Stanford, California 94305 - United States

Status: Contact for availability

Clinical Research Site

Gainesville, Florida 32608 - United States

Status: Contact for availability

Clinical Research Site

Kansas City, Kansas 66205 - United States

Status: Contact for availability

Clinical Research Site

Rochester, New York 14642 - United States

Status: Contact for availability

Clinical Research Site

Columbus, Ohio 43221 - United States

Status: Contact for availability

Clinical Research Site

Richmond, Virginia 23298 - United States

Status: Contact for availability

How to Enroll in This Study

To learn more about participating in this PHASE3 clinical trial for Myotonic Dystrophy Type 1, DM1, Myotonic Dystrophy, Myotonia, Myotonic Dystrophy 1, Myotonic Disorders, Steinert Myotonic Dystrophy, Steinert's Disease:

  1. Review the eligibility criteria with your healthcare provider
  2. Contact the study team for a pre-screening interview
  3. Schedule an in-person screening visit if eligible
  4. Review and sign the informed consent form
  5. Begin participation in the clinical trial

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