Patient Guide: Universal Rare Gene Study: A Registry and Natural History Study of Retinal Dystrophies Associated With Rare Disease-Causing Genetic Variants

Why Use Quri.ai for This Trial?

  • ✓ Simplified eligibility checker - know if you qualify in minutes
  • ✓ Direct contact with study coordinators at 37 locations
  • ✓ Plain language explanations of medical terms and procedures
  • ✓ Personalized enrollment support throughout your journey
  • ✓ Free service - no hidden fees or obligations
Trial ID: NCTNCT05589714
Status: 🟢 Enrolling Now
Condition: Inherited Retinal Degeneration, Retinitis Pigmentosa
Phase: Not Specified

Where You Can Participate

This study is available at 37 locations across the country.

Top locations include:
  • • Little Rock, Arkansas
  • • Los Angeles, California
  • • San Francisco, California
  • • And 34 more locations

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Universal Rare Gene Study: A Registry and Natural History Study of Retinal Dystrophies Associated With Rare Disease-Causing Genetic Variants - Join Clinical Trial NCTNCT05589714

How to Join This Clinical Trial - NCTNCT05589714

Learn how to participate in this Not Specified trial studying an investigational therapy for Inherited Retinal Degeneration, Retinitis Pigmentosa. This study is currently enrolling participants.

Am I Eligible for This Clinical Trial?

This clinical research study is looking for participants with Inherited Retinal Degeneration, Retinitis Pigmentosa. Eligibility requirements include specific age ranges, health status, and medical history. Contact the study team to learn if you qualify.

Condition Being Studied
Inherited Retinal Degeneration, Retinitis Pigmentosa
Treatment Being Tested
Investigational treatment
Study Phase
Not Specified - Research study
Enrollment Status
Currently enrolling participants
Study Identifier
NCTNCT05589714 - ClinicalTrials.gov Identifier
Sponsored By
Study sponsor

What to Expect as a Participant

Participating in this clinical trial involves:

  • Initial screening to determine eligibility
  • Regular study visits and health assessments
  • Receiving the study treatment or placebo
  • Medical monitoring and follow-up care
  • Contributing to medical research that may help others
  • Potential access to new treatments before they're widely available

Clinical Trial Benefits and Compensation

Participants in this clinical research study may receive:

  • Close medical monitoring by healthcare professionals
  • Access to potential new treatments
  • Compensation for time and travel (varies by study)
  • No-cost study-related medical care
  • The opportunity to help advance medical knowledge

Where Is This Clinical Trial Located?

This study is enrolling participants at 37 locations. Find a study site near you:

Clinical Research Site

Little Rock, Arkansas 72205 - United States

Status: RECRUITING

Clinical Research Site

Los Angeles, California 90033 - United States

Status: NOT_YET_RECRUITING

Clinical Research Site

San Francisco, California 94158 - United States

Status: RECRUITING

Clinical Research Site

Jacksonville, Florida 32209 - United States

Status: RECRUITING

Clinical Research Site

Miami, Florida 33136 - United States

Status: RECRUITING

Clinical Research Site

Atlanta, Georgia 30322 - United States

Status: RECRUITING

Clinical Research Site

Baltimore, Maryland 21236 - United States

Status: RECRUITING

Clinical Research Site

Boston, Massachusetts 02114 - United States

Status: RECRUITING

Clinical Research Site

Ann Arbor, Michigan 48105 - United States

Status: RECRUITING

Clinical Research Site

Rochester, Minnesota 55905 - United States

Status: RECRUITING

And 27 more locations available. Contact us to find the nearest participating site.

How to Enroll in This Study

To learn more about participating in this Not Specified clinical trial for Inherited Retinal Degeneration, Retinitis Pigmentosa:

  1. Review the eligibility criteria with your healthcare provider
  2. Contact the study team for a pre-screening interview
  3. Schedule an in-person screening visit if eligible
  4. Review and sign the informed consent form
  5. Begin participation in the clinical trial

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